In May of 2004, I was a 35-year-old single mom of three, looking forward to spending the summer with my daughters. It was their last day of school and I was meeting a friend for lunch as soon as I was finished with a doctor's appointment. The appointment did not go well.
After three months of doctor appointments trying to get to the bottom of my headaches and exhaustion, and weeks of antibiotics to treat the "breast infection" that had come on suddenly, I had finally convinced my doctor to order a mammogram. The technician could feel a lump that hadn't shown in the mammogram, so they did an ultrasound. That was followed immediately by a biopsy. That day, a Thursday, I was back to find out the results of the tests.
I really wouldn't say I was surprised to find out I had cancer. I had actually expected that. And I wasn't really scared, either, because I knew enough about breast cancer to know the survival rate was pretty high. I frequently heard of someone having a lumpectomy and not even needing to go through chemo, or going through a few weeks of chemo and not needing surgery. When the doctor, and his nurse, walked through the door, though, everyone outside at the desk stopped talking. The nurse gently closed the door and turned around and the look on her face stopped my heart. The doctor sat in front of me, put his hand on my shoulder, and said, "You have cancer, and it is bad."
The doctor went on to explain to me that I had Inflammatory Breast Cancer, at that time a rare and extremely aggressive form. He offered me tissues, tried to prescribe sedatives (Really???) and left the room to contact an oncologist. The oncologist skipped his lunch to meet with me.
By that point? Yeah. I was pretty scared. But the oncologist was calm, straight-forward, and confident. He told me that there was not a specific protocol for IBC, but that between the two of us, we were going to figure out the best way to treat it. He refused to tell me the expected survival rate, but promised me that one year later, I would be teaching other women with breast cancer how to survive. I later found out the three-year survival rate was below 10% at that time.
The very next morning, I took my daughters to my parents' house, had surgery to implant a port, then started chemo. My boyfriend, Mark, took me home with him and took care of me.
I underwent chemotherapy through June, July and August. In September, I had a modified radical mastectomy. Fifteen of 16 lymph nodes removed during the surgery tested positive. Time for another serious talk with my oncologist. Because of the aggressive nature of the cancer, he strongly recommended a hysterectomy and oophorectomy (the surgical removal of ovaries) to stop the advance of the cancer. As soon as I healed from that, I started radiation and began chemo again.
My last radiation treatment was the week of Christmas. My final chemotherapy infusion was Valentines day. I had lost nine months of my life, lost my hair (twice!), lost my energy, my breast, my chances of ever having more children, my home, and missed out on so many things in my children's lives. But I hadn't lost my fight.
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